Award Abstract # 2045679
CAREER: Advancing Remote Collaboration: Inclusive Design for People with Dementia

NSF Org: IIS
Division of Information & Intelligent Systems
Recipient: UNIVERSITY OF MARYLAND, COLLEGE PARK
Initial Amendment Date: March 31, 2021
Latest Amendment Date: December 15, 2022
Award Number: 2045679
Award Instrument: Standard Grant
Program Manager: Veronica Newhart
vnewhart@nsf.gov
 (703)292-0000
IIS
 Division of Information & Intelligent Systems
CSE
 Directorate for Computer and Information Science and Engineering
Start Date: April 1, 2021
End Date: March 31, 2026 (Estimated)
Total Intended Award Amount: $549,935.00
Total Awarded Amount to Date: $609,362.00
Funds Obligated to Date: FY 2021 = $549,935.00
FY 2023 = $59,427.00
History of Investigator:
  • Amanda Lazar (Principal Investigator)
    lazar@umd.edu
Recipient Sponsored Research Office: University of Maryland, College Park
3112 LEE BUILDING
COLLEGE PARK
MD  US  20742-5100
(301)405-6269
Sponsor Congressional District: 04
Primary Place of Performance: University of Maryland College Park
3112 Lee Bldg 7809 Regents Drive
College Park
MD  US  20742-5103
Primary Place of Performance
Congressional District:
04
Unique Entity Identifier (UEI): NPU8ULVAAS23
Parent UEI: NPU8ULVAAS23
NSF Program(s): Information Technology Researc,
HCC-Human-Centered Computing,
IIS Special Projects
Primary Program Source: 01002122DB NSF RESEARCH & RELATED ACTIVIT
01002324DB NSF RESEARCH & RELATED ACTIVIT
Program Reference Code(s): 7367, 1045, CL10
Program Element Code(s): 164000, 736700, 748400
Award Agency Code: 4900
Fund Agency Code: 4900
Assistance Listing Number(s): 47.070

ABSTRACT

Technology increasingly provides opportunities to interact remotely with others. People with cognitive impairment can be excluded from these opportunities when technology is not designed with their needs, preferences, and abilities in mind. Mild dementia is one form of cognitive impairment that is experienced by many individuals worldwide. Little is known about how technology should be designed to support people with mild dementia. In addressing this gap, this project has the potential to benefit not only people with dementia, but also researchers, caregivers, and the general public, who currently lack opportunities to interact with and learn from people with dementia. This project will also train the next generation of technology researchers and designers in two key ways: 1) with a remote dementia lab that scaffolds design activities involving end users with dementia, and 2) by co-developing and disseminating modules with people with dementia, disability advocates, and healthcare professionals that can be flexibly integrated into human-centered design courses.

The goal of this project is to design, develop, and evaluate approaches to support and study inclusive collaborative technologies that support people with mild dementia in remote interaction. The project will investigate: 1) empirical knowledge of preferences, benefits, and barriers experienced by people with mild dementia in using digital collaborative tools; 2) new interaction techniques to engage people with dementia in remote collaborative technology use through the iterative development of three novel applications; 3) a theoretical understanding of how established Computer Supported Cooperative Work (CSCW) theories can be adapted for dementia; 4) a validated framework for designing for people with mild dementia; and 5) innovative methods to remotely include people with dementia in design activities. In order to achieve these goals, this project involves research threads targeting three diverse domains (social, purpose-oriented, and cognitive) and interaction partners (peers with dementia, mixed ability groups of older adults, and caregivers). This project has the potential to transform research, design, development, and deployment of technologies for people with cognitive impairment, advancing collaborative technology design from highly customized and bespoke technology to an area ripe for scalable development and deployment.

This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.

PUBLICATIONS PRODUCED AS A RESULT OF THIS RESEARCH

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Chopra, Shaan and Dixon, Emma and Ganesh, Kausalya and Pradhan, Alisha and L. Radnofsky, Mary and Lazar, Amanda "Designing for and with People with Dementia using a Human Rights-Based Approach" Extended Abstracts of the 2021 CHI Conference on Human Factors in Computing Systems , 2021 https://doi.org/10.1145/3411763.3443434 Citation Details
Dixon, Emma and Anderson, Jesse and Blackwelder, Diana and L. Radnofsky, Mary and Lazar, Amanda "Barriers to Online Dementia Information and Mitigation" Proceedings of the 2022 CHI Conference on Human Factors in Computing Systems , 2022 https://doi.org/10.1145/3491102.3517554 Citation Details
Dixon, Emma and Anderson, Jesse and Blackwelder, Diana C and Radnofsky, Mary L and Lazar, Amanda "The Human Need for Equilibrium: Qualitative Study on the Ingenuity, Technical Competency, and Changing Strategies of People With Dementia Seeking Health Information" Journal of Medical Internet Research , v.24 , 2022 https://doi.org/10.2196/35072 Citation Details
Dixon, Emma and Anderson, Jesse and Lazar, Amanda "Understanding How Sensory Changes Experienced by Individuals with a Range of Age-Related Cognitive Changes Can Affect Technology Use" ACM Transactions on Accessible Computing , v.15 , 2022 https://doi.org/10.1145/3511906 Citation Details
Dixon, Emma and Michaels, Rain and Xiao, Xiang and Zhong, Yu and Clary, Patrick and Narayanan, Ajit and Brewer, Robin N. and Lazar, Amanda "Mobile Phone Use by People with Mild to Moderate Dementia: Uncovering Challenges and Identifying Opportunities: Mobile Phone Use by People with Mild to Moderate Dementia" Proceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS '22) , 2022 https://doi.org/10.1145/3517428.3544809 Citation Details
Hu, Ruipu and Gao, Ge and Lazar, Amanda "Exploring Videoconferencing for Older Adults with Cognitive Concerns Using a Dramaturgical Lens" , 2024 https://doi.org/10.1145/3663548.3675647 Citation Details
Lazar, Amanda and Brewer, Robin N. and Kacorri, Hernisa and Hong, Jonggi and Punzalan, Mary Nicole and Mahathir, Maisarah and Vander Hyde, Olivia and Ross III, Warren "How Content Authored by People with Dementia Affects Attitudes towards Dementia" Proceedings of the ACM on Human-Computer Interaction , v.5 , 2021 https://doi.org/10.1145/3479542 Citation Details
Maddali, Hanuma Teja and Dixon, Emma and Pradhan, Alisha and Lazar, Amanda "Investigating the Potential of Artificial Intelligence Powered Interfaces to Support Different Types of Memory for People with Dementia" CHI Conference on Human Factors in Computing Systems Extended Abstracts , 2022 https://doi.org/10.1145/3491101.3519858 Citation Details
Wood, Rachel and Dixon, Emma and Elsayed-Ali, Salma and Shokeen, Ekta and Lazar, Amanda and Lazar, Jonathan "Investigating Best Practices for Remote Summative Usability Testing with People with Mild to Moderate Dementia" ACM Transactions on Accessible Computing , v.14 , 2021 https://doi.org/10.1145/3460942 Citation Details
Wood, R and Dixon, E and Elsayed-Ali, S and Shokeen, E and Lazar, A and Lazar, J "Exploring Future Personalization Opportunities in Technologies used by Older Adults with Mild to Moderate Dementia" , 2023 Citation Details

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