Award Abstract # 1926209
STANDARD: Ethical Approaches to Empower Disabled Graduate Students in STEM

NSF Org: SMA
SBE Office of Multidisciplinary Activities
Recipient: ROCHESTER INSTITUTE OF TECHNOLOGY
Initial Amendment Date: August 7, 2019
Latest Amendment Date: February 14, 2024
Award Number: 1926209
Award Instrument: Standard Grant
Program Manager: Wenda K. Bauchspies
wbauchsp@nsf.gov
 (703)292-5034
SMA
 SBE Office of Multidisciplinary Activities
SBE
 Directorate for Social, Behavioral and Economic Sciences
Start Date: August 15, 2019
End Date: January 31, 2025 (Estimated)
Total Intended Award Amount: $281,900.00
Total Awarded Amount to Date: $338,185.00
Funds Obligated to Date: FY 2019 = $281,900.00
FY 2024 = $56,285.00
History of Investigator:
  • Kristen Shinohara (Principal Investigator)
    kristen.shinohara@rit.edu
Recipient Sponsored Research Office: Rochester Institute of Tech
1 LOMB MEMORIAL DR
ROCHESTER
NY  US  14623-5603
(585)475-7987
Sponsor Congressional District: 25
Primary Place of Performance: Rochester Institute of Technology
141 Lomb Memorial Avenue
Rochester
NY  US  14623-5603
Primary Place of Performance
Congressional District:
25
Unique Entity Identifier (UEI): J6TWTRKC1X14
Parent UEI:
NSF Program(s): Science & Technology Studies,
ER2-Ethical & Responsible Res,
NSF Research Traineeship (NRT),
Graduate Research Fellowship,
Project & Program Evaluation
Primary Program Source: 01002425DB NSF RESEARCH & RELATED ACTIVIT
04001920DB NSF Education & Human Resource
Program Reference Code(s): SMET, 9178, 137Z, 084Z, 9179
Program Element Code(s): 124Y00, 129Y00, 199700, 717200, 726100
Award Agency Code: 4900
Fund Agency Code: 4900
Assistance Listing Number(s): 47.075

ABSTRACT

This award supports a project that will investigate how academic culture and relationships systematically disadvantage disabled students; specifically, it will focus on disabled graduate students in computing. The researcher will investigate manifestations of ableism, the act of privileging nondisabled people over those with disabilities, which is understood for the purposes of the investigation as an ethical issue. She will determine how ableist academic culture contributes to unethical systemic obstacles for achievement at the graduate level. To do so, she will interview graduate students with disabilities in computing and related fields. She will recruit current and former graduate students with a diverse representation across disabilities in computing and related fields from different institutions. She will also interview faculty who have advised such students, and representatives from different university disability services offices. She will use this data to develop a set of guidelines on how to address accessibility barriers in research are to be developed on the basis of the outcomes of this project. The guidelines will be disseminated to students, faculty advisors, and university disability services offices so they can begin to adopt anti-ableist language and strategies and actively incorporate inclusion in their work. Those who stand to benefit from the outcomes of this are not limited to those in computing; they will also be applicable to students and researchers in adjacent fields.

This is a research project to addresses a fundamental research question: How do academic expectations and relationships contravene ethical conduct and create barriers for disabled graduate students, and what guidance and resources effectively empower students and allies to engage equitable and anti-ableist practices to enable students to achieve success? To address this research question, we propose to use a qualitative research approach to analyze public-facing institutional disability service policies, and to interview disabled graduate students, faculty advisors, and disability services staff to understand how resources and attitudes toward disability create barriers for disabled students at the graduate level. The researcher will then critically analyze this qualitative data with an ethical anti-ableist lens and engage participatory design efforts to develop toolkits with guidelines and strategies that incorporate anti-ableist approaches for graduate students, faculty advisors, and disability service offices. The project will contribute knowledge about academic culture that may persist ableist barriers to success for disabled graduate students. Contributions of this work include empirical findings about how ableism manifests as barriers for graduate students, and a toolkit with guidelines that incorporate anti-ableist strategies for academic success for disabled students, faculty advisors and disability services offices. She will deploy toolkits to students, faculty and disability service offices and evaluate the effectiveness of the toolkits to provide useful anti-ableist strategies to empower students.

This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.

PUBLICATIONS PRODUCED AS A RESULT OF THIS RESEARCH

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Shinohara, Kristen and McQuaid, Michael and Jacobo, Nayeri "Access Differential and Inequitable Access: Inaccessibility for Doctoral Students in Computing" In The 22nd International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS '20) , 2020 https://doi.org/10.1145/3373625.3416989 Citation Details
Shinohara, Kristen and McQuaid, Mick and Jacobo, Nayeri "The Burden of Survival: How Doctoral Students in Computing Bridge the Chasm of Inaccessibility" Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems. , 2021 https://doi.org/10.1145/3411764.3445277 Citation Details
Shinohara, Kristen and Tamjeed, Murtaza and McQuaid, Michael and Barkins, Dymen A. "Usability, Accessibility and Social Entanglements in Advanced Tool Use by Vision Impaired Graduate Students" Proceedings of the ACM on Human-Computer Interaction , v.6 , 2022 https://doi.org/10.1145/3555609 Citation Details
Tamjeed, Murtaza and Tibdewal, Vinita and Russell, Madison and McQuaid, Michael and Oh, Tae and Shinohara, Kristen "Understanding Disability Services Toward Improving Graduate Student Support" ASSETS '21: The 23rd International ACM SIGACCESS Conference on Computers and Accessibility , 2021 https://doi.org/10.1145/3441852.3471231 Citation Details

PROJECT OUTCOMES REPORT

Disclaimer

This Project Outcomes Report for the General Public is displayed verbatim as submitted by the Principal Investigator (PI) for this award. Any opinions, findings, and conclusions or recommendations expressed in this Report are those of the PI and do not necessarily reflect the views of the National Science Foundation; NSF has not approved or endorsed its content.

This project showed that academic culture creates gaps in access between disabled and non-disabled computing PhD students, systematically disadvantaging disabled students. We identified how ableism—the act of privileging nondisabled people over those with disabilities—manifests across academic systems and culture. We initialized guidance for future students, faculty, and disability services staff for how to support PhD computing students with disabilities.

We studied how 30 PhD students with disabilities in computing disciplines work around access obstacles in their day-to-day research. Students in our studies were blind, low vision, deaf or hard of hearing, autistic or neurodivergent, and had mobility disabilities. We evaluated 18 university websites and interviewed 17 disability services staff to understand how institutions support disabled graduate students. We interviewed 14 faculty who served as PhD advisors to students with disabilities. In addition to engaging students, faculty, and staff, we analyzed how students with disabilities used research tools needed to complete their work. We led workshops to understand and facilitate communication across these groups for improved student support. 

This project was guided by the ACM’s code of ethics and approach to fairness and non-discrimination, “Technologies and practices should be as inclusive and accessible as possible and computing professionals should take action to avoid creating systems or technologies that disenfranchise or oppress people. Failure to design for inclusiveness and accessibility may constitute unfair discrimination.” This project documents how university infrastructure and academic culture discriminate against students with disabilities when materials, tools, and communications are inaccessible to them. For instance, labs may not be navigable by wheelchair users, or they may not have haptically distinguishable lab equipment a blind student can access, or communication with chat messaging may block visual awareness of ongoing conversations for deaf students. Social practices signal assumptions that students are not disabled, and that they are expected to communicate their needs and to obtain their own support. But our work showed that disability services offices do not know how to manage graduate student needs (i.e., access to advanced tools for data analysis); PhD advisors are unaware of these challenges and expect students to navigate these issues independently, often without necessary resources. Consequently, students employ inefficient trial and error approaches, including spending their own money to gain access. Many graduate programs have timelines that do not account for such effort, thus unfairly penalizing disabled students by increasing their time to degree compared to nondisabled peers. We provide an example below.

A graduate student may use software to analyze large datasets in their research. Such analysis involves visually checking charts and graphs for patterns because it is easier to perceive a trend from lines on a graph than to discern one from a spreadsheet of thousands or millions of numbers. A blind student may not have visual access to charts and graphs. Meanwhile, the software used to process large datasets produces charts without alternative text describing the visualization. The student may try other tools, they may ask a lab-mate to describe the charts to them, or they may try to adjust parameters to make the charts easier to see (make lines bolder, adjust colors), especially if the student is low vision and has some sight. These strategies require time and resources – for instance to pay an undergraduate to describe the charts – which delays the project and increases time to graduation. The student’s limited access to the visual charts is not reflective of their ability to analyze the data; they successfully complete the analysis when they gain access to the visual information. This research ecosystem assumed that student could see, which in turn disallowed resources, e.g., disability services are unprepared to provide support to access charts, or analysis tools lack visual description options. By contrast, not assuming the student can see the visualization enables processes to find tools and support, e.g., disability services could prepare student helpers trained on visual description who could be called upon as needed.

To explore best practices in supporting students, this project engaged deaf and hard of hearing master’s students to research the accessibility of usability methods for researchers who use American Sign Language (ASL). This work trialed how structuring accessible spaces and providing ASL interpreter support enabled ASL signing deaf and hard of hearing students to effectively conduct research.

Academic culture and structure that excludes disabled students comprises two parts: access differential and inequitable access. The bias in academic culture and systems can be measured as the access differential – the gap between what nondisabled and disabled students have access to; the disadvantage it creates is inequitable access – the severity of that gap and its impact on student success. Assuming that graduate students do not have disabilities disadvantages and unfairly burdens disabled students. With access, disabled graduate students are capable of conducting high quality research. In academia, the most disabling condition is inaccessibility. 

 


Last Modified: 04/21/2025
Modified by: Kristen Shinohara

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